Blar i Institutt for pedagogikk på forfatter "Zelihić, Deniz"
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Caring for a child with Bardet-Biedl syndrome: A qualitative study of the parental experiences of daily coping and support
Zelihić, Deniz; Hjardemaal, Finn R.; von der Lippe, Charlotte (Journal article; Peer reviewed, 2020)This study aimed to explore the parental experiences of having a child with Bardet–Biedl syndrome (BBS) and how parents managed to cope with this situation. Five parents of children with BBS (0–18 years old) participated ...