Browsing Institutt for pedagogikk by Author "Zelihić, Deniz"
Now showing items 1-1 of 1
-
Caring for a child with Bardet-Biedl syndrome: A qualitative study of the parental experiences of daily coping and support
Zelihić, Deniz; Hjardemaal, Finn R.; von der Lippe, Charlotte (Journal article; Peer reviewed, 2020)This study aimed to explore the parental experiences of having a child with Bardet–Biedl syndrome (BBS) and how parents managed to cope with this situation. Five parents of children with BBS (0–18 years old) participated ...