dc.contributor.author | Yeo, Caroline | |
dc.contributor.author | Rennick-Egglestone, Stefan | |
dc.contributor.author | Armstrong, Victoria | |
dc.contributor.author | Borg, Marit | |
dc.contributor.author | Franklin, Donna | |
dc.contributor.author | Klevan, Trude Gøril | |
dc.contributor.author | Llewellyn-Beardsley, Joy | |
dc.contributor.author | Newby, Christopher J. | |
dc.contributor.author | Ng, Fiona | |
dc.contributor.author | Thorpe, Naomi | |
dc.contributor.author | Voronka, Jijian | |
dc.contributor.author | Slade, Mike | |
dc.date.accessioned | 2022-02-17T08:43:42Z | |
dc.date.available | 2022-02-17T08:43:42Z | |
dc.date.created | 2021-12-16T11:35:54Z | |
dc.date.issued | 2021 | |
dc.identifier.citation | Yeo, C., Rennick-Egglestone, S., Armstrong, V., Borg, M., Franklin, D., Klevan, T., Llewellyn-Beardsley, J., Newby, C., Ng, F., Thorpe, N., Voronka, J. & Slade, M. (2021). Uses and Misuses of Recorded Mental Health Lived Experience Narratives in Healthcare and Community Settings: Systematic Review. Schizophrenia Bulletin, 48(1), 134-144. | en_US |
dc.identifier.issn | 0586-7614 | |
dc.identifier.uri | https://hdl.handle.net/11250/2979551 | |
dc.description.abstract | Mental health lived experience narratives are first- person accounts of people with experience of mental health problems. They have been published in journals, books and online, and used in healthcare interventions and anti-stigma campaigns. There are concerns about their potential misuse. A four-language systematic re- view was conducted of published literature characterizing uses and misuses of mental health lived experience nar- ratives within healthcare and community settings. 6531 documents in four languages (English, Danish, Swedish, Norwegian) were screened and 78 documents from 11 countries were included. Twenty-seven uses were iden- tified in five categories: political, societal, community, service level and individual. Eleven misuses were found, categorized as relating to the narrative (narratives may be co-opted, narratives may be used against the author, narratives may be used for different purpose than autho- rial intent, narratives may be reinterpreted by others, narratives may become patient porn, narratives may lack diversity), relating to the narrator (narrator may be sub- ject to unethical editing practises, narrator may be sub- ject to coercion, narrator may be harmed) and relating to the audience (audience may be triggered, audience may misunderstand). Four open questions were identified: does including a researcher’s personal mental health narrative reduce the credibility of their research?: should the con- fidentiality of narrators be protected?; who should profit from narratives?; how reliable are narratives as evidence?) | en_US |
dc.language.iso | eng | en_US |
dc.rights | Navngivelse 4.0 Internasjonal | * |
dc.rights.uri | http://creativecommons.org/licenses/by/4.0/deed.no | * |
dc.title | Uses and Misuses of Recorded Mental Health Lived Experience Narratives in Healthcare and Community Settings: Systematic Review | en_US |
dc.type | Peer reviewed | en_US |
dc.type | Journal article | en_US |
dc.description.version | publishedVersion | en_US |
dc.rights.holder | © The Author(s) 2021. | en_US |
dc.source.pagenumber | 134-144 | en_US |
dc.source.volume | 48 | en_US |
dc.source.journal | Schizophrenia Bulletin | en_US |
dc.source.issue | 1 | en_US |
dc.identifier.doi | https://doi.org/10.1093/schbul/sbab097 | |
dc.identifier.cristin | 1969360 | |
cristin.ispublished | true | |
cristin.fulltext | original | |
cristin.qualitycode | 2 | |