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dc.contributor.authorTurk, Eva
dc.contributor.authorMicetic-Turk, Dusanka
dc.contributor.authorSikic Pogacar, Maja
dc.contributor.authorTapajner, Alojz
dc.contributor.authorVlaisavljevic, Veljko
dc.contributor.authorPrevolnik Rupel, Valentina
dc.date.accessioned2021-05-03T12:15:26Z
dc.date.available2021-05-03T12:15:26Z
dc.date.created2021-01-17T10:44:38Z
dc.date.issued2020
dc.identifier.citationTurk, E., Mičetić-Turk, D., Šikić-Pogačar, M., Tapajner, A., Vlaisavljević, V., & Prevolnik Rupel, V. (2020). Health related QoL in celiac disease patients in Slovenia. Health and Quality of Life Outcomes, 18(1).en_US
dc.identifier.issn1477-7525
dc.identifier.urihttps://hdl.handle.net/11250/2753277
dc.description.abstractBackground: Measurements of health‑related quality of life (HRQoL) among celiac disease patients using a validated questionnaire have been lacking in Slovenia. This study aims to measure HRQoL in celiac disease (CD) patients using EQ‑5D internationally validated questionnaire and comparing it to the HRQoL of the general population. Methods: In this cross sectional analysis all of the approximately 2000 members of the Slovenian Celiac Society were invited to take part. We used a 3 step approach for recruitment and data collection. HRQoL was evaluated through the EuroQoL EQ‑5D‑5L instrument (Slovenian version) and analysed using the ordinal logistic regression. Results: Out of 321 patients who gave their consent, 247 celiac patients were included in the study (77%). 68% of the participants were female and 53% of them lived in an urban setting. Most patients originated from North‑East Slove‑nia, whereas approximately 30% of patients came from other Slovenian regions. The EQ‑5D respondents’ self‑reported health status at the time of the study show that most patients have slight or no problems when living with CD. The duration of the gluten‑free diet, academic education and rare (< 1 ×year) doctor visits affect EQ‑5D in a positive way. On the other hand, higher age and chronic rheumatic disease were negatively associated with EQ‑5D also when compared to the general population. Conclusion: This is the first Slovenian study to measure the HRQoL of Slovenian CD patients, using an internationally validated questionnaire. The results of our study show that HRQoL is slightly impaired among Slovenian patients with CD. Clinical characteristics are better determinants of their HRQoL than socio‑demographic factors. Greater awareness of the impact of CD on patients’ HRQoL would improve the holistic management of CD patients.en_US
dc.language.isoengen_US
dc.rightsNavngivelse 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/deed.no*
dc.titleHealth related QoL in celiac disease patients in Sloveniaen_US
dc.typePeer revieweden_US
dc.typeJournal articleen_US
dc.description.versionpublishedVersionen_US
dc.rights.holder© The Author(s) 2020.en_US
dc.source.volume18en_US
dc.source.journalHealth and Quality of Life Outcomesen_US
dc.source.issue1en_US
dc.identifier.doihttps://doi.org/10.1186/s12955-020-01612-9
dc.identifier.cristin1872607
dc.source.articlenumber356en_US
cristin.ispublishedtrue
cristin.fulltextoriginal
cristin.qualitycode1


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