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dc.contributor.authorHäikiö, Kristin
dc.contributor.authorSagbakken, Mette
dc.contributor.authorRugkåsa, Jorun
dc.date.accessioned2020-04-06T13:10:19Z
dc.date.available2020-04-06T13:10:19Z
dc.date.created2019-09-25T18:59:26Z
dc.date.issued2019
dc.identifier.citationHäikiö, K., Sagbakken, M., & Rugkåsa, J. (2019). Dementia and patient safety in the community: a qualitative study of family carers’ protective practices and implications for services. BMC Health Services Research, 19(1), 635en_US
dc.identifier.issn1472-6963
dc.identifier.urihttps://hdl.handle.net/11250/2650511
dc.description.abstractBackground Dementia is a cause of disability and dependency associated with high demands for health services and expected to have a significant impact on resources. Care policies worldwide increasingly rely on family caregivers to contribute to service delivery for older people, and the general direction of health care policy internationally is to provide care in the community, meaning most people will receive services there. Patient safety in primary care is therefore important for future care, but not yet investigated sufficiently when services are carried out in patients’ homes. In particular, we know little about how family carers experience patient safety of older people with dementia in the community. Methods This was an explorative study, with qualitative in-depth interviews of 23 family carers of older people with suspected or diagnosed dementia. Family carers participated after receiving information primarily through health professionals working in dementia care. A semi-structured topic guide was used in a flexible way to capture participants’ experiences. A four-step inductive analysis of the transcripts was informed by hermeneutic-phenomenological analysis. Results The ways our participants sought to address risk and safety issues can be understood to constitute protective practices that aimed to prevent or reduce the risk of harm and/or alleviate damage from harm that occurs. The protective practices relate to four areas: physical harm, economic harm, emotional harm, and relational harm. The protective practices are interlinked, and family carers sometimes prioritize one over another, and as they form part of family practice, they are not always visible to service providers. As a result, the practices may complicate interactions with health professionals and even inadvertently conceal symptoms or care needs.Conclusions When family caregivers prevent harm and meet needs, some needs may be concealed or invisible to health professionals. To recognize all needs and provide effective, safe and person-centered care, health professionals need to recognize these preventive practices and seek to build a solid partnership with family carers.en_US
dc.language.isoengen_US
dc.rightsNavngivelse 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/deed.no*
dc.titleDementia and patient safety in the community: a qualitative study of family carers’ protective practices and implications for servicesen_US
dc.typePeer revieweden_US
dc.typeJournal articleen_US
dc.description.versionpublishedVersionen_US
dc.rights.holder© The Author(s)en_US
dc.source.pagenumber1-13en_US
dc.source.volume19:635en_US
dc.source.journalBMC Health Services Researchen_US
dc.identifier.doi10.1186/s12913-019-4478-2
dc.identifier.cristin1729199
dc.relation.projectNorges forskningsråd: 256431en_US
cristin.ispublishedtrue
cristin.fulltextoriginal
cristin.qualitycode2


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Navngivelse 4.0 Internasjonal
Except where otherwise noted, this item's license is described as Navngivelse 4.0 Internasjonal