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dc.contributor.authorFjose, Marianne
dc.contributor.authorEilertsen, Grethe
dc.contributor.authorKirkevold, Marit
dc.contributor.authorGrov, Ellen Karine
dc.date.accessioned2018-11-01T09:31:43Z
dc.date.available2018-11-01T09:31:43Z
dc.date.created2018-10-23T13:42:53Z
dc.date.issued2018
dc.identifier.citationBMC Health Services Research. 2018, 18 (745), 1-12.nb_NO
dc.identifier.issn1472-6963
dc.identifier.urihttp://hdl.handle.net/11250/2570541
dc.descriptionThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License, which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.nb_NO
dc.description.abstractBackground: Among all cancer patients in the palliative phase, ¾ have reached the age of 65. An aging population will increase the number of people afflicted with cancer, and create challenges for patients, family members and health services. Nevertheless, limited research has focused explicitly on the experiences and needs of older cancer patients in the palliative phase and their families. Therefore, the aim of this study is to explore what older home dwelling cancer patients in the palliative phase and their close family members, as individuals and as a family, experience as important and difficult when facing the health services. Methods: We used a qualitative descriptive design. Data was collected through family group interviews with 26 families. Each interview consisted of an older home dwelling cancer patient and one to four family members with different relationships to the patient (e.g. spouse, adult children and/or children-in-law). Data was analysed by qualitative content analysis. Results: The main theme is “Non-palliative care” – health care services in the palliative phase not tailored to family needs. Three themes are revealed: 1) exhausting cancer follow-up, 2) a cry for family involvement, and 3) fragmented care. Conclusion: The health services seem poorly organised for meeting the demands of palliative care for older home dwelling cancer patients in the palliative phase and their family members. Close family members would like to contribute but health services lack systems for involving them in the follow-up of the patient.nb_NO
dc.description.sponsorshipThis project was funded by a research career grant to Marianne Fjose (Grant No. 2010/754–5806/2010), Western Norway University of Applied Sciences, Faculty of Health and Social Sciences, Department of Health and Caring Sciences, Førde, Norway, previously Sogn and Fjordane University College, Faculty of Health Studies, Førde, Norway.nb_NO
dc.language.isoengnb_NO
dc.rightsNavngivelse 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/deed.no*
dc.title“Non-palliative care” – a qualitative study of older cancer patients’ and their family members’ experiences with the health care systemnb_NO
dc.title.alternative“Non-palliative care” – a qualitative study of older cancer patients’ and their family members’ experiences with the health care systemnb_NO
dc.typeJournal articlenb_NO
dc.typePeer reviewednb_NO
dc.description.versionpublishedVersionnb_NO
dc.rights.holder© The Author(s). 2018nb_NO
dc.source.pagenumber1-12nb_NO
dc.source.volume18nb_NO
dc.source.journalBMC Health Services Researchnb_NO
dc.source.issue745nb_NO
dc.identifier.doi10.1186/s12913-018-3548-1
dc.identifier.cristin1622695
cristin.unitcode222,56,0,0
cristin.unitnameFakultet for helse- og sosialvitenskap
cristin.ispublishedtrue
cristin.fulltextoriginal
cristin.qualitycode2


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