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dc.contributor.authorSørhus, Grete Skeie
dc.contributor.authorLandmark, Bjørg Th.
dc.contributor.authorGrov, Ellen Karine
dc.date.accessioned2017-10-02T12:39:52Z
dc.date.available2017-10-02T12:39:52Z
dc.date.created2016-05-11T13:57:36Z
dc.date.issued2016
dc.identifier.citationKlinisk Sygepleje. 2016, 30 (2), 87-100.nb_NO
dc.identifier.issn0902-2767
dc.identifier.urihttp://hdl.handle.net/11250/2457749
dc.description.abstractBackground: Research and white papers highlight the possibility for patients in the palliative phase to stay at home despite a high level of symptom burden. Purpose: This study describes the experiences in relatives when cancer patients want to spend the last days of their lives at home. Methods: The study has a qualitative design and in-depth interviews were performed to gather data. Results: The sample consists of seven individual interviews with family caregivers representing different positions in the family. Four main themes emerged: (i) valuable time at home for the parties involved, (ii) being available all day and night, (iii) relief of the patients' symptoms and fulfilment of their desires, (iv) experiences and follow-up from the health care system. A synthesis reveals the concepts responsibility and dependence. Conclusion: relatives dealing with palliative care at home have a strong engagement and need stamina to handle complex physical and psychological demands and suffering. Additionally, relatives in this study describe a high level of responsibility as well as being dependent on support from the health care system.nb_NO
dc.language.isonobnb_NO
dc.titleAnsvarlig og avhengig – Pårørendes erfaringer med forestående død i hjemmet : Responsible and dependent – Relatives’ experience with expected death at homenb_NO
dc.typeJournal articlenb_NO
dc.typePeer reviewednb_NO
dc.description.versionacceptedVersionnb_NO
dc.source.pagenumber87-100nb_NO
dc.source.volume30nb_NO
dc.source.journalKlinisk Sygeplejenb_NO
dc.source.issue2nb_NO
dc.identifier.doi10.18261/issn.1903-2285-2016-02-03
dc.identifier.cristin1355065
cristin.unitcode222,90,3,0
cristin.unitnameInstitutt for sykepleievitenskap - Drammen
cristin.ispublishedtrue
cristin.fulltextoriginal
cristin.qualitycode1


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