Blar i Fakultet for humaniora, idretts- og utdanningsvitenskap på tidsskrift "European Journal of Medical Genetics"
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Caring for a child with Bardet-Biedl syndrome: A qualitative study of the parental experiences of daily coping and support
(Journal article; Peer reviewed, 2020)This study aimed to explore the parental experiences of having a child with Bardet–Biedl syndrome (BBS) and how parents managed to cope with this situation. Five parents of children with BBS (0–18 years old) participated ...